University of Oxford Green Templeton College HEXI Home Page Department of Primary Care Health Sciences

Current Work

HEXI academic theme leads are engaged in a wide range of research and other commissioned projects relating to patient experience, patient involvement and person centred care. Current and recent work is listed below. For details of who to contact to find out more or if you would like to work with us then please email Dr Sian Rees in the first instance.

Understanding and using health experiences

  • Testing accelerated experience-based co-design using national patient narratives. In conjunction with King’s College London.
  • A wide range of specific health experience narrative research, currently including: neonatal surgery, ECT, families of adolescents who self harm, early stage chronic kidney disease, influenza like illness in children at risk, relatives of people in a persistent vegetative state, gout, cleft lip and palette, domestic violence and late miscarriage and stillbirth.
  • Using patient narrative to inform development of NICE guidelines and quality standards.  In conjunction with NICE and & King’s College, London.

Patient and public involvement in research

  • Testing experiential information as an aid to clinical trial recruitment – the START trial. In conjunction with University of Manchester.
  • Researchers’ experience of patient and public involvement in research.
  • Comparing narrative interview re-analysis with existing methods for identifying uncertainties about the effectiveness of treatment. In conjunction with NETSCC James Lind Alliance Priority Setting Partnership on Hip and Knee Replacement.
  • Researching the impact of patient and public involvement in research. Junior Research Fellowship commencing January 2013. In conjunction with Oxford Biomedical Research Centre.

Patient reported outcome and experience measures

  • Development of a combined Patient Reported Outcome Measure (PROM) and Patient Reported Experience Measure (PREM). In conjunction with University of Kent and the London School of Economics.
  • Examination of outcomes of treatments for schizophrenia from patients’ and carers’ perspectives and comparison with conventional clinical scales.
  • Evaluation of PROMs in a variety of settings, including clinical trials and real world settings to inform use of PROMs in NHS service delivery. In conjunction with the Picker Institute, Europe.
  • Development and testing of a range of PROMs/PREMs:
    • PROMs for long term conditions in primary care
    • Piloting PROMs in mental health services
    • Evaluating the EQ-5D for the NHS Outcomes Framework
    • Using PROMs in commissioning
    • Structured reviews of PROMs for skin cancer and cosmetic surgery
    • PROMs use in a range of clinical trials, mainly in orthopaedics.

Ehealth

  • Investigating the effect of online experiential information on users – the EXPERT trial. In conjunction with Sussex, Northumbria and Glasgow Universities.

Commissioning

  • Using patient experience to inform commissioning. In conjunction with the National Perinatal Epidemiology Unit and University of Westminster.
  • Using patient experience narratives to inform outcomes-based commissioning. In conjunction with COBIC Solutions.

Teaching and learning

  • Patient-centred curriculum redesign for autism in primary care. In conjunction with the Royal College of General Practice
  • Researching the impact of using patient experience in medical education. In conjunction with Oxford University Hospitals Trust.

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