University of Oxford Green Templeton College HEXI Home Page Department of Primary Care Health Sciences

Health Experiences Organisations

This is a list of organisations where you can find relevant resources.

United Kingdom

“Healthtalkonline is the award-winning website of the DIPEx charity. Healthtalkonline and its sister website, Youthhealthtalk, let you share in more than 2,000 people’s experiences of over 60 health-related conditions and illnesses.”

“Ensuring excellent experience across health and social care: making it easy for patients to provide feedback on their care; trusted, independent information to help others find great care; detailed patient experience as outcomes for providers and commissioners.”

Patient Opinion
“An independent site about your experiences of UK health services, good or bad. We pass your stories to the right people to make a difference.”

Patient Voices
“The Patient Voices programme…aims to facilitate the telling and the hearing of some of the unwritten and unspoken stories of ordinary people so that those who devise and implement strategy in health and social care, as well as the professionals and clinicians directly involved in care, may carry out their duties in a more informed and compassionate manner. We hope that, as a result of seeing the stories, patients, their carers and clinicians may meet as equals and work respectfully together for the benefit of all.”

“Patient Stories is a new social enterprise which uses documentary and drama-documentary film-making techniques to provoke discussion and debate about safety and quality issues amongst healthcare professionals.”

Telling Stories (NHS National Genetics Education and Development Centre)
“The Project Team represents a collaborative effort between the Genomics Policy Unit (GPU), University of Glamorgan, University of Plymouth, the Genetics Interest Group (GIG) at the Wales Gene Park, and the NHS National Genetics Education and Development Centre.”

The Centre for Patient Leadership
“The Centre for Patient Leadership (CPL) provides learning and support for a new generation of healthcare leaders – Patient Leaders.”


100 Patient Stories
“The 100 Patient Stories Project seeks to develop a deeper understanding of patients’ experiences of Open Disclosure, and to formulate indicators of success in the disclosure of adverse events.”

Patients Like Me
“PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for you to share your real-world health experiences in order to help yourself, other patients like you and organizations that focus on your conditions.”

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